AARP (formerly known as the American Association of Retired Persons) is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 years and older. Through information and education, advocacy and service, they seek to enhance the quality of life for all by promoting independence, dignity, and purpose.
The Alzheimer’s Association is the largest national voluntary health organization dedicated to funding research into the causes, treatments, prevention, and cure of Alzheimer’s disease and to providing support to the four million Americans with the disease, their families, and caregivers.
Alzheimer’s Disease Research (BrightFocus Foundation)
BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer’s disease, macular degeneration, and glaucoma. They are working to save mind and sight.
Alzinfo.org is a tool of the Fisher Center for Alzheimer’s Research Foundation to educate people about this devastating disease. The mission of the website is to educate, engage, and create an online community with 24 hours a day, 7 days a week access to information and support via online chats, message boards and the most comprehensive resource databases available.
American Association for Homecare
AAHomecare is the unified voice that represents all the elements of homecare under one roof. From home medical equipment to home health services and from rehab technology to respiratory/infusion therapy. AAHomecare is dedicated to working to advance the value and practice of quality health care services at home. With over 3,000 members, AAHomecare is building a community of support for the homecare industry.
American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. Their website contains valuable resources including prevention and risk factors, treatment methods, detection guidelines, and patient services that help cancer patients and their families.
Compassion and Choices
Compassion and Choices works to protect and expand end-of-life options, and to ensure healthcare providers honor and enable patients’ decisions about their care. They work nationwide in state legislatures, Congress, courts, medical settings and communities to empower the public with information and tools, advance policies that allow individuals to make fully informed decisions about their healthcare, and authorize and implement medical aid in dying.
The Henry J. Kaiser Family Foundation (Consumer Resources: Understanding Health Reform)
Kaiser is a non-profit, private operating foundation focusing on the major health care issues facing the U.S., as well as the U.S. role in global health policy. They serve as a non-partisan source of facts, information, analysis and journalism for policymakers, the media, the health care community, and the public.
Medicare Rights Center
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare. Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care. MRC’s website contains information about Medicare benefits, options and changes, examples of interesting cases we have dealt with, and resources for getting involved in our consumer advocacy work. The site also contains updated information for consumers about the upcoming changes in Medicare and how those will affect their health coverage.
Medicare Interactive is brought to you by the Medicare Rights Center (MRC), a national not-for-profit, consumer service organization, dedicated to ensuring that older adults and people with disabilities get good affordable health care. Since 1989, MRC has been helping people with Medicare understand their rights and benefits, navigate the system and get the health care to which they are entitled.
National Academy of Elder Law Attorneys
The National Academy of Elder Law Attorneys, Inc., is a nonprofit association which assists lawyers, bar organizations, and others who work with older clients and their families. Established in 1987, the Academy provides a resource of information, education, networking, and assistance to those who must deal with the many specialized issues involved with legal services to the elderly and disabled.
National Alliance for Caregiving
A very good resource for caregiving families and professionals, NAC is a Bethesda based association of caregiving professional organizations (include GCM) that provides information, support, and national advocacy on behalf of caregivers. They have accomplished many admirable reports, including providing an excellent guide to other websites with information on caregiving. NAC’s site is an excellent source of information for professionals looking for access to primary information on national issues on caregiving.
National Association of Social Workers
The National Association of Social Workers (NASW) is the largest organization of professional social workers in the world. NASW serves nearly 155,000 social workers in 55 chapters throughout the United States, Puerto Rico, the Virgin Islands, and abroad. NASW was formed in 1955 through a merger of seven predecessor social work organizations to carry out three responsibilities: strengthen and unify the profession; promote the development of social work practice; and advance sound social polices. Promoting high standards of practice and protecting the consumer of services are major association principles.
National Chronic Care Consortium
The National Chronic Care Consortium is a strategic alliance of individuals and organizations across industry segments and professions committed to chronic illness care reform. They engage people in practical, collaborative methods to improve chronic care for America’s largest, highest-cost, and fastest-growing customer group. They work to improve care under current market conditions and seek to change payment methods, health policies, management systems, and clinical interventions where they impeded the ability of consumers to get the care they want and of plans, programs, and providers to offer effective care.
National Citizens’ Coalition for Nursing Home Reform
The mission of the National Citizens’ Coalition for Nursing Home Reform is to improve the quality of life of residents in the nation’s nursing homes.
National Council on Patient Information and Education (NCPIE)
Founded in 1982, NCPIE, is a non-profit coalition working to stimulate and improve communication of information on the appropriate use of medicines to consumers and health care professionals. NCPIE develops and provides valuable patient educational programs and educational resources promoting the latest advances in communication research and practice. NCPIE’s public-facing websites include: talkaboutrx.org; bemedicinesmart.org; bemedwise.org; mustforseniors.org and recoveryopensdoors.org.
National Family Caregivers Association
The National Family Caregivers Association offers services in the areas of information and education, support and validation, and public awareness and advocacy, toward the goal of minimizing the disparity between a caregiver’s quality of life and that of mainstream Americans.
National Guardianship Association
The mission of the National Guardianship Association is to provide educational, training, and networking opportunities for guardians; to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.
National Multiple Sclerosis Society
The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward. Contact the National Multiple Sclerosis Society at 1.800.344.4867.
National Senior Citizens Law Center
The National Senior Citizens Law Center (NSCLC) advocates nationwide on behalf of low-income elderly individuals and persons with disabilities. It provides litigation assistance, research and consulting support, national policy representation, training and manuals, and periodicals. Substantive areas covered on the site include: age discrimination, Americans with Disabilities Act, Medicaid, Medicare, nursing homes, Older Americans Act, pension rights, and social security. The site includes articles and legal documents on many of these topics. The Center’s publications, including numerous manuals and a newsletter, are described, but are for sale in print form only.
New Beginnings Drug and Alcohol Rehabilitation
The dependency on illicit substances and/or alcohol comes with a unique series of challenges, and considering the increase of individuals admitting to using illicit substances, it is clear that treatment is more important than ever before. New Beginnings is able to provide assistance to individuals searching for the right recovery program. They are a place where you can gather information without bias and without the notion that you have to be ‘sold’ on anything.
Nurse Competence in Aging
Nurse Competence in Aging (NCA) is improving the quality of healthcare older adults receive by enhancing the geriatric competence – the knowledge, skills, and attitudes – of the 400,000 nurses who are professionally identified as members of approximately 57 specialty nursing associations.
Senior Resource Connect
Senior Resource Connect brings the experience and expertise of the AJFCA network to the public to support older adults to live with health and dignity in the setting of their choosing and to assist caregivers in making this possible for their parents and loved ones. Senior Resource Connect provides information and resources to assist individuals in discussing their needs with aging services professionals and provides a one-stop connection to local service providers in communities throughout North America.
Stand Up for Health Care
Stand Up for Health Care is a project of Families USA, a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, they have earned a national reputation as an effective voice for health care consumers for 25 years.